- 24th meeting of the National Ethics Councils (NEC) , Romania
Ron Iphofen delivered a plenary presentation at the 24th meeting of the National Ethics Councils (NEC) Forum in Iasi, Romania, 4-5 April, 2019. He spoke on the ethics of research with vulnerable populations and moderated a breakout group on dynamic consenting with vulnerable participants. Useful networking for the PRO-RES Project took place and extra insights for the PRO-RES Framework on the issues of vulnerability and consent were gained. Several delegates from across Europe expressed concern for maintaining contact and liaising with PRO-RES.
- World Health Organisation Symposium on the Future of Digital Health Systems, 6–8 February 2019, Copenhagen, Denmark
Over the 3 days, the event featured an array of high-level speakers and panellists, including several ministers of health from European countries. It offered more than 25 parallel sessions on topics ranging from artificial intelligence and interoperability to governance and ethics. Experts at the event highlighted that the governance of digital health systems requires urgent attention, and that credibility and public trust are essential to realizing the full potential of digital health. New standards and regulatory approaches are needed to ensure security and transparency so that patients are confident in the use of their data. Building this trust requires political will to take responsibility and to lead, and to ensure that misuse of technologies is prevented. John Oates presented and led a session on current trends in research ethics, including description of PRO-RES and its aims.
- Economic and Social Research Council funded workshop: ‘Differential respondent incentives’, 7 June 2019, London, UK
This workshop focused on the ethical, practical and cost/benefit issues of differentially incentivising participants. This is common practice in survey research in social sciences to improve response rates, increase representation of hard-to-recruit people and groups, or to recognise differences in burden. However, it is a controversial practice, for example it may be seen to be inequitable and could be potentially exploitable by respondents. The aim of the workshop, attended by representatives from major UK cohort studies, UK government research, and UK social and market research agencies, was to explore and specify the arguments for and against, the various ways in which they can be employed and human rights concerns, and to work towards an output of use to researchers considering using differential incentives. A publication will result and will be useful resource for the PRO-RES framework.
- Westminster Higher Education Forum Seminar: Protecting Research Integrity: reproducibility, the impact of the REF and improving governanceThursday 11th October 2018, London, U.K.
This meeting was attented from around 100 senior people, comming from a wide spectrum of interests in research integrity, from government, research councils, universities and other research organisations, and academic publishers. Members of the House of Commons Science and Technology Select Committee were speaking and engaged in the discussions. John Oates participated in discussions and distributed details of the PRO-RES project. A paper by John Oates analysing integrity issues and linking to PRO-RES was published as part of the seminar record.